Patient Centered IT

This is part 5 of the series on the Patient Centered Infrastructure. It documents knowledge management as a part of the Patient Centered Process: Profile(Data) Information Retrieval(Information) Knowledge Management(Knowledge) Education(Skills) Medical Services(Interaction) Summary for TLDRs; Patient knowledge is not only one collateral result from healthcare processes it is an important factor for most results and […]

Caring for patients is caring for information for patients. This is especially true as patients are able to care for themselves to a great extent using the right information. This is a call for a rather profound connection between healthcare and information science. Digital health drives initiatives to a great extent but there are many […]

The intention of this post is to describe problems that we are facing with our current information situation given the COVID-19 pandemic in healthcare and opportunities we have to improve this right now, in the near future and long term. This post aims to indicate some directions to solutions or mentions aspects of solutions. I […]

In the preceding posts of this series we learned about the Patient Centered Infrastructure and all its constituents that ensure a seamless patient journey which always supports a precise picture of the individual health situation, collects all information about possible outcomes and helps to perform the necessary tasks in order to reach the personal health […]

This post gives a definition of the patient experience “We define the patient experience as the sum of all interactions, shaped by an organization’s culture that influence patient perceptions across the continuum of care.” But why so distant? The patients perception may tell him: ‘I am fine’ but next day he’ dead. I think we […]

Medical tourism is special in many aspects. Patients travel first to be treated. Main drivers for this behavior are quality and/or price. This makes medical tourism a real market scenario with real customers. Patient Choice The first remarkable thing about medical tourism is choice. Whatever the reason is that patient choice is often not possible […]

This post with the story of Bill Claxton a patient suffering from a rare neuroendocrine cancer called carcinoid is amazing. It shows how a patient claims a patient centered approach and achieves to succeed. Success is owed to developing a surgical plan, and assembling a multidisciplinary medical team all done by himself. This is an […]

In her post on e-patients.net Susannah Fox gives a couple of data about the relationship of patients and their willingness to use the internet to communicate. Her central point However, the internet does not replace doctors, nurses, and other health professionals.  93% of people living with chronic disease turn to a health professional for medical […]

But how much trust is really needed to support a patient’s individual health? Maybe this is not the right question because trust is a concept with a general image but individual consequences. What feels right and trustworthy for one person is unacceptable for another. Additionally the trust needed for a patient – physician dialogue in […]